To take this recommendation forward and promote international research collaboration on the development and use of new forms of data, it was proposed to establish an Expert Group for a period of two years, with the following terms of reference:
- conduct a review of activities, practice and problems across a range of countries regarding the ethical use of new forms of data for research;
- identify and analyse ethical issues that may arise from research use of various new forms of data, with particular reference to the balance between the social value of research utilising such data and the protection of the well-being and rights, including privacy rights, of individuals;
- convene an international conference to identify and promote best practice regarding the ethics of using new forms of data to address research issues in the social sciences and at the boundary with other scientific disciplines;
- draft internationally acceptable guidelines, suitable for adoption by research funding agencies, for an ethical approach to the use of new forms of data for research.
Expert Group : Chair - Peter Elias (UK), Vice Chair - Hallvard Fossheim (Norway), Members from Australia, Germany, Israel, Japan, Mexico, South Africa, Spain, Switzerland, US and EU